Orphanet is a database of information on rare diseases and orphan drugs for all publics. Its aim is to contribute to the improvement of the diagnosis, care and treatment of patients with rare diseases.
Orphanet includes a Professional Encyclopaedia, which is expert-authored and peer-reviewed, a Patient Encyclopaedia and a Directory of expert Services. This Directory includes information on relevant clinics, clinical laboratories, research activities and patient organisations.

COSBID is an international group of clinical and basic scientists working on various kinds of brain injury resulting from head injuries or strokes of different types. Our work includes both the investigation and treatment of human patients and the investigation of experimental models of these diseases. It has become evident mainly from experimental work that permanent and transient depolarisations (see Patients/Families for a description of what is meant by this) of gray matter of the central nervous system may be major causes of progressive deterioration in border zones of traumatic or ischemic foci, and appear to accompany or possibly cause clinical deterioration (as is frequently observed in patients with these conditions). These depolarisations, referred to as peri-infarct depolarisations (PID) have attracted interest over the past two or more decades among scientists in the field. They resemble another phenomenon, cortical spreading depression (CSD), that was first described by Leão as a sudden depression of electrocortical activity spreading across the cortex of rabbits (Leao, A. A. P. 1944).

Avert-IT is an EU-funded project to develop a mechanism, for use within intensive and high-dependency care units, which will have the ability to monitor and predict the likelihood, and primary causes of arterial adverse hypotension events. The full project title is "Advanced Arterial Hypotension Adverse Event prediction through a Novel Bayesian Neural Network" and will run for three years, beginning in January 2008.

La Fundació Institut de Recerca del Hospital Universitario Vall d´Hebron (FIR-HUVH) nace en 1994 con la creación de la Fundació de Recerca Biomèdica i Docència de la Ciudad Sanitaria Vall d’Hebron. Durante el 2002 adquiere su actual denominación, pasando a formar parte de su Patronato instituciones como la Universitat Autònoma de Barcelona y la Agència d´Avaluació de Tecnologies Sanitàries i Recerca Mèdiques, y más recientemente el Banc de Sang i Teixits (BST), el Institut Català de Farmacologia (ICF) y el Institut de Diagnòstic per la Imatge (IDI).

El IR-HUVH también realiza colaboraciones y participa en proyectos e iniciativas con el Departament d´Universitats, Recerca i Societat de la Informació de la Generalitat de Catalunya (DURSI), y el Ministerio de Ciencia y Tecnología.

Por otra parte el IR-HUVH está implicado en el desarrollo de las Redes Nacionales de Investigación Cooperativa que financia el Instituto de Salud Carlos III. Sus investigadores participan en en 6 RETICS y en 6 CIBER.

Main Objectives:
1. To develop and disseminate standards for the collection, analysis and reporting of intensive care monitoring data collected from brain injured patients.
2. To provide an efficient multi-centre infra-structure for generating evidence on the utility of new forms of invasive and non-invasive intensive care monitoring and methods for improving the care and outcome of brain-injured patients.
3. To develop and use a standardised database as a tool for hypothesis generation and the development, testing and validation of new data analysis methodologies.

Objetivos principais:
* Interação entre a NEUROCIRURGIA e as diversas especialidades médicas envolvidas no atendimento ao TRAUMA.
* Criar e manter uma fonte ágil de informação à comunidade neurocirúrgica brasileira e de especialidades afins sobre os procedimentos e condutas adotadas (aprovadas) pela comunidade neurocirúrgica internacional.
* Criar e manter possibilidades de pesquisa contínua via internet através de estudos multicêntricos das patologias relacionadas ao trauma.
* Criar e manter uma fonte ágil de informação à comunidade neurocirúrgica e especialidades afins sobre os avanços científicos e publicações que possam nos afetar como neurocirurgiões, neurointensivistas e emergencistas.
* Colaborar no desenvolvimento de novas metodologias ou tecnologias

El proyecto colombiano para el manejo del trauma celebral
tiene como misión mejorar el pronóstico de los pacientes con trauma craneoencefálico en Colombia. Las actividades se iniciaron en las ciudades de Cali y Bogotá como un proyecto piloto de medicina basada en evidencia científica.

The European Brain Injury Consortium aims:

1) To establish close co-operation between European Neuro Trauma Centers and investigators in the management of traumatic brain injury (TBI) and other types of acute brain damage and 2) To act as an advisory organ in both practical and theoretical issues concerning all kinds of brain injury studies.

The consortium includes many leading research centers from Europe. The consortium was founded in 1994 and formally established a

El Instituto Guttmann - Hospital de Neurorehabilitación, tiene entre sus objetivos el de promover la formación especializada de los profesionales de la salud vinculados al mundo de la neurorehabilitación; al mismo tiempo que impulsar los conocimientos de las técnicas i experiencias que favorecen la salud y la calidad de vida de las personas afectadas por una gran discapacidad física.

Neurocirugia, la revista de la Sociedad Española de Neurocirugía (SENEC) se encuentra disponible on-line con los artículos gratuitos a texto completo (formato PDF).

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